I’m excited because today I received my copy of Questioning Protocol: How One Mom Dispensed Equal Doses of Humor, Humility, and Corporate Smarts to Help Her Family Navigate Their Health Care Crisis by Randi Redmond Oster. Randi has kindly allowed me to post an excerpt from her book (see below). I feel that it illustrates how important it is to speak up when something doesn’t feel right and to not be intimidated by the medical process. On the Mission page of her website, Randi says that through Questioning Protocol she “seeks to enable caregivers to feel in-control and to understand the choices that need to be made on behalf of their ailing loved ones.”
“NO” leads to a cheaper, faster and safer patient option
By Randi Redmond Oster
We were taking our eighth trip to the emergency room with my son Gary, who has Crohn’s disease, rushing from one hospital to the next. In Norwalk, the doctors inserted an NG tube up his nose, through his esophagus and down to his stomach to stop the vomiting that was wracking his body, then they sent him to Hartford, where he’d had surgery a couple of weeks earlier.
After an hour-and-a-half ambulance ride, Gary wanted to yank the thick plastic tube out of his nose. He kept repeating “Get it out!” sounding like a heavy-metal artist with a heavy beat. “Get it out! Get it out! Get it out!”
Gary screamed his song at the first nurse he saw in Hartford. She said, “Let me find out from a doctor if it has to stay in,” and then quickly departed.
After an eternity, she returned. “The doctor wants to take an X-ray of the tube to make sure it is positioned correctly in his stomach,” she said. “They need to confirm Norwalk’s procedure.”
She had to be kidding. Another X-ray? I was afraid of the amount of radiation Gary was getting from all the CT-scans and X-rays he’d received with each visit. No one but me seemed to be keeping track. The cost of these procedures is two-fold: There is the dollar cost. (X-rays range from $50 to $400, depending on the facility, the doctor, and the location of the desired picture. And CT-scans can range from about $350 in a clinic to more than $9,000 in a hospital, according to a Consumer Reports study in 2012). And there is another cost: increased radiation exposure to my son. An X-ray of the abdomen contains 10 times as much radiation as a chest X-ray, and a CT-scan of that same area (which he’d undergone during a recent hospital stay) can be 1000 times as strong, according to the American Cancer Society.
There was no way I wanted my child to be so over-radiated that he’d end up with cancer in 30 years. I turned to the nurse and shouted, “No!”
The nurse repeated, “The doctor wants to confirm that the NG tube is positioned correctly.”
I found it difficult to believe that the only way to confirm that the tube was in correctly was with an X-ray.
“That’s what the doctor wants,” she said.
“There will be no X-ray. Find another way,” I insisted.
“So, may I state this correctly? You are refusing medical treatment for your son,” the nurse said.
I saw the clarity of her question and recognized her guilt-producing tactic. Either I’d change my mind or, if I did not, the hospital would document my response and protect itself legally. “No X-ray,” I said.
She left. Gary screamed that he didn’t care about an X-ray. When the nurse returned, she said that since I was refusing treatment, they would admit Gary with the tube in place.
When we got upstairs, a new nurse who looked like she graduated yesterday, entered our room. “I understand they are concerned about whether the NG tube is placed properly,” she said, “and that you said ‘no X-ray.’”
She continued, “I learned in nursing school that the PH of the stomach is in the 1-3 range. I bet I can get some PH papers and take some of the stuff out from the tube and then I can test it.”
I couldn’t believe there was a solution as simple as this. “Really?” I said.
“Sure! Let me get the papers.” She raced out of the room.
In less than two minutes, the nurse returned, dipping something into the bag that collected stuff from the tube. She put some cloudy, gel-like liquid in a cup, then dipped a PH strip in there.
She brought the color guide to Gary. If it turned in the reddish area, she said, we’d know that the PH level meant the stuff was from his stomach. It took seconds for the strip to turn scarlet. Couldn’t they have done this in the ER? It sure was cheaper than an X-ray. And safer. And faster.