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Parkinson’s Resources

I teach aquatic exercise classes for people living with Parkinson’s that emphasize movement and balance, and volunteer with my local support group. My friends with PD and their carepartners inspire me every day with their focus on living the best life they can.

Local blogs I Follow

Fair Oaks Parkinson’s support group – my local support group in Northern Virginia

Women With Parkinson’s Disease – a support group in Northern Virginia

A Soft Voice in a Noisy World
Karl Robb has lived with Parkinson’s disease of over 20 years. He shares his medical journey with us through his blog and book of the same name.

Moving and Shaking – Information and advice about staying active with Parkinson’s for patients and caregivers. Author John Wilson lives with PD.

Parkinson Foundations in the U.S.A.

Parkinson’s Action Network (PAN)
The Parkinson’s Action Network (PAN) is the unified voice of the Parkinson’s community advocating for better treatments and a cure. They educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s. PAN’s work spans a variety of issues from Medicare therapy to research funding to access to telehealth.

National Parkinson Foundation (NPF)
Lots of great resource material and forums: Ask the Doctor Ask the Nutritionist Talk to a Speech Clinician. I recommend their Aware in Care kit to help you plan for a hospital visit and avoid complications. It’s free!

Northwest Parkinson Foundation (NWPF)
The NWPF is based in Seattle, WA, and has a great website. Some of the things you’ll find are: Email News Update – weekly Parkinson Post – bi-monthly(US Mail or email) Wellness Center  covers Physical Health, Cognition and Emotion, Personal Healing, Home and Away, Care Partners, Motivation and Inspiration, and My Wellness.

Michael J. Fox Foundation for Parkinson’s Research
While the primary focus of this foundation is research, this website also features lots of good information on Living with Parkinson’s.

Parkinson’s Disease Foundation
From their website: “The Parkinson’s Disease Foundation (PDF) is working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research to find the causes of and a cure for Parkinson’s, while supporting people with Parkinson’s, their families and caregivers through educational programs and support services.”

American Parkinson Disease Association
From their website: “The American Parkinson Disease Association, Inc. was founded in 1961 to “ease the burden and find a cure” for Parkinson’s disease. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease.”

Parkinson Foundation of the National Capital Area (PFNCA)
Our Fair Oaks support group is part of the PFNCA.

Davis Phinney Foundation
Our mission: to help people living with Parkinson’s to live well today. To support that mission we offer specific programs, information and tools for living well. Click here for information about their Victory Summit Symposia.

PD Trials – Parkinson’s research

Parkinson Foundations Australia

Parkinson’s SA – South Australian organization. Lots of great resources.

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Parkinson Social Network

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A Soft Voice In A Noisy World

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